Mobius has worked with some amazing companies over the years and has made some lifelong friends in the process. Throughout our first 6 years these relationships that we have built have become incredibly important to us and its because of them we have decided to support two charities every year.
This year will be a bit different as we will be finishing 2018 and the whole of 2019 raising money for our chosen charities. the first two are The Neonatal intensive care unit at Hull Royal Infirmary and The Hull Homeless Project run by Andy Smith.
World meet Darcey, Darcey meet world. In July 2015 my little girl Darcey was born and if it wasn’t for the amazing staff at NICU, Hull Royal Infirmary it could also have been the day my world ended.
Amy, my wife hadn’t had the easiest of pregnancies with Darcey and the labour and birth proved no different. On July 10th Amy was rushed into theatre for an emergency C-section as Darceys heart rate had dropped dangerously low and Amy was losing blood. I was a complete wreck and was about as useful an inflatable dartboard. I was ushered into some theatre dress and rolled into the theatre to support Amy. I couldn’t fully get my head around what was happening as the procedure was not going the way the staff hoped..more and more doctors seemed to be attending to her and i was just dumbfounded as to what was happening but i knew it wasn’t good…After an hour or so (it felt like a week) they managed to get Darcey out but she wasn’t breathing and Amy had lost dangerous levels of blood so concern was growing for her safety. The staff never once gave up or even indicated this was going to be anything but a positive outcome and we some breathing intervention Darcey took her first breath. She had to stay in intensive care for a week before being allowed to the normal baby ward.
Amy took a little bit longer to heal and was in hospital a while longer. Never once did she complain or moan and was only ever concerned for Darceys safety. I have never ever been so frightened and don’t frighten easily, but to come so close to losing two people who make up your world is a really horrific feeling to experience and not one i would wish on anyone. the feeling of complete and utter helplessness is overwhelming and took some time to disappear.
But the staff, Wow, these guys don’t get paid enough to do what they do…footballers get paid millions to kick a ball and these guys get a fraction to save lives!! they fight every second of every day to make sure they do everything humanly possible to save the lives of the people and babies in their care. I don’t have the words to describe my admiration and thanks for what they do daily and what they did for my family.
I knew when we decided to raise money for some charities this was always going to be one of them. I had to do something to give back what they so willingly gave to me. NICU will always have my praise, admiration and eternal gratitude.
I’m Joshua Barnfather. I’m 30 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.
This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.
For my whole life, I’ve tried to avoid UV light. I’ve covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin, and protect my health.
Despite the best efforts of mine and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.
“In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.”
After months of unsuccessful surgeries, chemotherapy, trial drugs and, most recently, radiotherapy targeting the lymph nodes in my neck, standardised treatments have been deemed ineffective.
How your money will help
Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that the immunotherapy treatment, Pembrolizumab, could extend my life. However, this is not readily available on the NHS for angiosarcoma patients and costs around £100,000 per year.
Your generous contributions will help to fund these drugs, their administration and associated care.
No matter how small, I am grateful for any and all contributions to fund my treatment.
“Thank you for taking the time to read my story.”
Mobius are a small company who have met some truly wonderful people of their journey. There are people out there saving lives daily with no thanks expected, who just do it because its who they are. there are people who work full-time and then spend every other hour running a charity to support people living on the streets. People often in despair with no one to turn too.
These people, to us are the real super heroes and if we can do something, anything to help them a little bit in their quest then thats what we are going to do. we are committed to raising money, offering our digital support or anything else we can help these modern day super heroes to continue making a difference to so many lives.